Scleroderma-a chronic autoimmune condition that causes hardening, thickening, or tightening of the skin and attacks the heart, lungs, kidneys, and gastrointestinal tract-is extraordinarily difficult to diagnose and can take a huge toll on the
psychological well-being of the individual. From the first moment of her diagnosis, author Karen Gottesman took charge and educated herself on every aspect of her condition. Now, as a "patient-expert, " she guides those newly diagnosed step by step through their first year with scleroderma. She provides crucial information about the nature of the disease, treatment options, diet, exercise,
social concerns, emotional issues, networking with others, and
This is a wonderful book! As a newly diagnosed patient, I have found this book to be the best book I have read on scleroderma. Not only is it the most comprehensive, but it is extremely well organized
This book was extremely helpful in my quest to better understand what someone very
close to me is experiencing. I now have the knowledge and the understanding to help my friend cope with her disease.